Drawing on the support, understanding, and advocacy I have received throughout my medical journey, I hope to create a place where families navigating chronic childhood medical conditions can find connection, encouragement, and practical support. More than simply sharing my story, my goal is to build a community where experiences are shared, relationships are formed, and families feel understood and less alone.
— Benjamin Momber
Benjamin Momber
📍 Colorado • Tetralogy of Fallot
Born with Tetralogy of Fallot, Ben underwent two open-heart surgeries, a heart stent procedure, and multiple heart catheterizations, emerging as a varsity athlete, class president, and community leader. His journey inspired Heartykids.org.
Benjamin Momber
"I have learned to meet challenges with adaptability and perseverance rather than letting them define my limits."
My Journey
The scar that started the journey.
Living with a chronic childhood medical condition has taught me the power of grit, empathy, and community. Born with Tetralogy of Fallot, I underwent my first open-heart surgery at four months old, followed by a second at eight years old, along with several related procedures in the years between and after.
Standing on top of Garden of the Gods — defying limits.
Determined to defy those who might view my heart condition as a setback, I have learned to meet challenges with adaptability and perseverance rather than letting them define my limits. To strengthen myself physically, I have climbed Colorado mountains, rappelled down Utah cliffs, and competed in both varsity basketball and tennis. Equally important, my experiences have strengthened my empathy and commitment to community — whether serving as my class’s president, participating in theater, or volunteering my time. Navigating diverse schools and cultures as a member of a military family with a congenital heart condition has also taught me how to thrive in new and challenging environments.
Community Support
Accepting an award at The Colorado Springs School — a milestone made possible by an incredible community.
My journey has included surgeries, uncertainty, and challenges, but it has also been filled with extraordinary opportunities, meaningful relationships, and unwavering support. Along the way, my family and I have benefited from the compassion of healthcare providers, programs dedicated to helping families facing medical challenges, military communities, teachers, extended family, and countless others. That support has taken many forms — from Children’s Hospital Colorado, Ronald McDonald House Charities, and the Air Force Exceptional Family Member Program to my school community and the many individuals who helped shape my journey. Together, they demonstrate the power of community and reinforce the importance of ensuring that no family faces difficult circumstances on their own.
My Goal
The support I received helped shape who I am today, and I hope to honor that gift by helping others navigate their own journeys with courage, hope, and confidence.
Heart Warriors
Stories from Our Community
Every family that shares their journey helps another find hope.
♥
Coming Soon
Coming Soon: Heart Warrior Story. We are gathering stories from the community. Be the first to share yours and give hope to families who need it most.
Give hope to newly diagnosed families searching for answers
🤝
Connect with families across the globe who truly understand
⭐
Honor your child's bravery and celebrate how far they've come
Get in Touch
Hearty Kids is Here for Your Family
Whether you have a question, want a one-on-one conversation, or are ready to share your story — Hearty Kids is here to listen.
❓
Ask a Question
Questions about heart surgery, TOF, or our community? We'll point you in the right direction.
📞
Request a One-on-One Conversation
Sometimes you just need to talk to someone who gets it. Schedule a personal call.
Send a Message
♥Thank you!
♥ Frequently Asked Questions
Everything You Want to Know
About Hearty Kids, sharing stories, and finding support.
🔍
No questions match your search. Try different keywords.
About Hearty Kids
What is Hearty Kids?
Hearty Kids is a community built by Benjamin Momber, a 17-year-old born with Tetralogy of Fallot (TOF). Drawing on the support he received throughout his own journey, Ben created Hearty Kids as a place where families navigating chronic childhood medical conditions can find connection, encouragement, and practical support. It is a space where experiences are shared, relationships are formed, and families feel understood and less alone.
Who is Hearty Kids for?
Hearty Kids is for any family touched by a chronic childhood medical condition — especially congenital heart conditions like TOF. Whether your child is awaiting diagnosis, preparing for surgery, in recovery, or thriving years later, you belong here. Military families, caregivers, siblings, and anyone who cares for a child with a heart condition are all welcome.
Is Hearty Kids a nonprofit or medical organization?
Hearty Kids is a community platform, not a medical organization or licensed healthcare provider. Hearty Kids does not offer medical advice, diagnoses, or treatment guidance. Its mission is to connect families, share lived experiences, and provide resources that can provide professional support. Always consult your child's care team for medical decisions.
Who runs Hearty Kids?
Hearty Kids was founded by Benjamin Momber based on his personal experience and his belief in the power of shared stories to reduce isolation and build hope.
How is Hearty Kids funded?
Hearty Kids is a community-driven initiative. The site does not run advertisements or sell products. To support its mission, please reach out through the Contact Me form.
Heart Conditions & TOF
What is Tetralogy of Fallot (TOF)?
Tetralogy of Fallot is a congenital (present at birth) heart defect involving four structural abnormalities of the heart that work together to reduce the flow of oxygenated blood to the body. It is one of the most common critical congenital heart defects. Most children with TOF require open-heart surgery, typically within the first year of life. With proper treatment, people with TOF can lead full, active lives.
My child was just diagnosed with a congenital heart condition. Where do I start?
Start by building a strong relationship with your child's cardiologist and surgical team and asking questions. Then, connect with your community: reading stories from families who have been through similar experiences can provide real comfort and practical perspective. Children's hospitals and Ronald McDonald House Charities are also excellent resources for families navigating this early stage.
Can children with heart conditions grow up to live normal lives?
Every child's situation is different, and outcomes depend on the specific condition and care received. Your child's medical team is the best source of guidance for your individual situation. Hearty Kids exists to show families what is possible.
Sharing Your Story
Why should I share my family's story?
Your experience may be what another family somewhere needs to hear right now. Stories can reduce isolation and help newly diagnosed families. Sharing your journey here can create connections with families across the globe who truly understand, helping others feel less alone, and becoming part of something larger than any one family's story.
Who can submit a story?
Any family member or caregiver with a personal experience of childhood chronic medical conditions — particularly congenital heart conditions — is welcome to submit. This includes parents, grandparents, siblings, and kids themselves. All stories are welcome — in any voice, at any stage of the journey.
What should I include in my story?
There is no required format. You might share the diagnosis, the surgery, the recovery, a milestone, a moment of happiness, or the lessons learned along the way. Short or long — what matters most is that it is genuine. The Share Your Journey form includes some prompts to help get started.
Will my story be published automatically?
No. To ensure Hearty Kids remains a safe and encouraging space for everyone, all submitted stories are reviewed before being published on the site. There will be an opportunity to review how your story appears before it goes live.
Can I submit photos with my story?
Yes. The Share Your Journey form includes a photo upload option. Photos are entirely optional but can make your story more personal and impactful for other families. Any photos submitted are also reviewed before publication.
What if I change my mind after submitting?
A story can be withdrawn any time before or after publication. Simply contact Hearty Kids through the Contact Me form to request that your story be removed.
Finding Support
What is the Ronald McDonald House?
Ronald McDonald House Charities (RMHC) provides a home away from home for families whose children are receiving medical care far from home. With locations near major children's hospitals across the country, RMHC keeps families close to their child during treatment — often at little or no cost.
What is the Air Force Exceptional Family Member Program (EFMP)?
The Air Force Exceptional Family Member Program supports active duty Air Force families that include a member with special medical or educational needs. The EFMP coordinates assignments to locations where appropriate services are available and connects families with support resources. For military families navigating a child's heart condition across multiple duty stations, EFMP can be an important lifeline.
How can children's hospitals help my family?
Children's hospitals offer everything from diagnosis and surgical care to long-term follow-up and family support services.
Can Hearty Kids help me find a doctor or hospital?
Hearty Kids is not a medical referral service, but its Support Organizations section includes trusted institutions with pediatric cardiac programs. To find specialized care, contacting your local children's hospital or consulting resources from the American Heart Association and the Congenital Heart Public Health Consortium is recommended.
Contact & Community
How do I get in touch with Hearty Kids?
Use the Contact Me form at the bottom of the page. Whether you have a question, want a one-on-one conversation, or are ready to share your story — Hearty Kids is here to listen.
How long does it take to get a response?
Hearty Kids aims to respond to every message within 3–5 business days. Each message is taken seriously; however, response times may occasionally be longer during busy periods.
Can I share Hearty Kids with my hospital or support group?
Please do. The more families who find this community, the more stories get shared and the fewer families feel alone. Share the link — heartykids.org — with anyone who might benefit.
I want to get more involved. How can I help?
Sharing your story and encouraging others to share their stories is a powerful way to get involved. If you are interested in supporting Hearty Kids in another way, please reach out through the Contact Me form.
Hearty Kids is proud to be part of the Heart of the Summer Community Open House hosted by Ronald McDonald House Charities of Southern Colorado. Join us for a morning of community, connection, and support for families navigating childhood medical conditions.